Hindsight can be a powerful thing. If you could have a test to identify a genetic condition in you, would you want to know? We may all have a gut response, but let’s challenge that gut. Which conditions would you want to know about and which would you rather keep hidden? When genetics are not personal, can you make an individual choice about whether you want to know? Who has the right not to know? At what cost? A genetic counsellor uses their experience to explore a client’s personal and family narrative to guide them towards an informed choice. Roberta Rizzo is a registered genetic counsellor in the UK and Europe. Her work involves counselling families affected by genetic conditions and familial cancer. She currently works at Southampton Hospital, having gained experience in London. Her special interests include oculogenesis and psychiatric genetic counselling. She is a committee member of the British Association of Nurse Genetic Counsellors (AGNC), where she works with national bodies to promote and protect the work of genetic counsellors. Roberta is working with the Ministry of Health and Mater Dei to establish genetic counselling as a service in Malta. This talk was given at a TEDx event using the TED conference format but organised independently by a local community. For more information, visit https://www.ted.com/tedx

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